Burning mouth in Sjogren's Syndrome

Lately my mouth symptoms have gotten so bad -
tongue tingling
burning feeling in whole mouth
loss of taste
feeling tongue is swollen
weird metallic taste in mouth
I drink alot of water but have learnt that while that is important it is not a cure. In SS, decreased exocrine gland function leads to the "sicca complex", a combination of dry eyes and dry mouth. An exocrine gland is not simply water. It is made up of complicated combinations of material for a particular task. For example tears are to lubricate, prevent bacteria and remove dirt and dust. So it is not just a matter
of replacing water in the diet.
So here are some things that I am trying to help control my extreme symptoms of dry mouth at present:

• I have noticed that sugar does aggravate these symptoms so I have eliminated it from my diet.
• I have been using lip balm daily.
• A gel-based saliva substitute at night or if I have a rest
• Mouthwash designed for dry mouth - I find this is the best relief (Make sure you never use ordinary mouthwash as this is extremely drying)

Here is some great information about treating dry mouth - What Can I Do About Dry Mouth?

Eye complications in Sjogren's Syndrome

When I came out of the anasthetic, after the operation, my eyes were really dry and sore, especially one of them. I thought I must have had my eye open or had been leaning on that eye or something as it just didn't seem right. I now know that Sjogren's Syndreome can have this complication and the surgeon and anesthetist should have been told I had Sjogren's. The moral of the story is no matter how mild or under control Sjogren's is these doctors need to know you have it if you are having any operation.
After my operation I needed to use eye ointments which are thicker than artificial tears. Because they moisturize and protect the eye for several hours. They may blur your vision so they are most effective during sleep.