tag:blogger.com,1999:blog-480140972539070676.post8659313055254004476..comments2023-10-28T01:52:34.893-07:00Comments on sjogrens blog: Please join in my Sjogren's book giveaway Lee @ sjogrens blog http://www.blogger.com/profile/15728445089750426476noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-480140972539070676.post-29730303466312115472017-03-05T10:24:43.833-08:002017-03-05T10:24:43.833-08:00Mine is primary SS. For YEARS AND YEARS I felt jus...Mine is primary SS. For YEARS AND YEARS I felt just horrible! So many DRS just kept telling me that I had fibromyalgia. (Including my mother) I thought if I heard that word one more time I'd lose my mind or puke!!!! In September of 2010 I was walking to the back door to let my dogs out in the morning and it felt as if someone put a knife in my left lumbar and I was on the floor and couldn't get up. I looked as if I had a stroke, dragging my left leg behind me. Horrific pain yet numb...it was Labor Day weekend (Friday at that) nodody would see me until Tuesday. Even then he didn't even check to see I had no reflexes AT ALL! Nerve damage set in. Mono neuropathy is what it ended up being. Several years later when I fired all my DRS and got new ones, I FINALLY KNEW WHAT HAPPENED! And no.... as I said to everyone, FIBROMYALGIA DOES NOT MAKE YOU PARALYZED!!!<br />Meantime, things have progressed... it has hit my entire PNS.. but no more MAJOR paralysis at least. It's come to hit my ANS. BP drops to almost nothing sometimes without warning... heart goes crazy...facial nerve problems with pain. I was begging for root canals before not realizing it was nerve pain. My last blood work now came back RA positive... HEY!!! Why not? Margauxhttps://www.blogger.com/profile/18279231675592125457noreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-80773567934096521342016-07-16T03:07:54.599-07:002016-07-16T03:07:54.599-07:00Thanks so much for this blog. I am always learing ...Thanks so much for this blog. I am always learing something new even though I have had Sjogrens for many years.Anonymoushttps://www.blogger.com/profile/02668606364742004566noreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-57411289566465781062016-04-22T01:09:35.983-07:002016-04-22T01:09:35.983-07:00 A few years ago my mother was diagnosed with Sjog... A few years ago my mother was diagnosed with Sjogrens and Rhuematoid Arthritis.Just a few months ago my sister was diagnosed with Sjogrens and IGg4. Another disease I Know very little about. What are my chances of getting one or two or all three. She is my older sister. There are 8yrs between us. Her, as well as our mother, had health problems for years before being diagnosed. After seeing numerous doctors and specialist and hundreds and hundreds of visits later they finally put a name on their illnesses. Should or can I be tested for them now even if i have no symptoms? Are they hereditary? Any information or helpful advice would be greatly appreciated. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-54139653024750660402015-04-17T08:33:44.157-07:002015-04-17T08:33:44.157-07:00Thanks for mentioning this on your facebook page t...Thanks for mentioning this on your facebook page that I follow. We really do need to raise awareness of this horrible condition all over the world as it's still so poorly understood. I was diagnosed with primary sjogrens in 2012 but was previously told that I'd had lupus since my teens and possibly even earlier than that. I get so fed up with constantly having something hurting or not working properly and I know that most people who know me just think I'm a moaning hypochondriac. Keep up the good work with both your blog and your facebook page! xxxMama Kittyhttps://www.blogger.com/profile/16499481507800844134noreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-26405524985009830082015-04-16T15:58:06.587-07:002015-04-16T15:58:06.587-07:00I was diagnosed 4 years ago, but have had SS for m...I was diagnosed 4 years ago, but have had SS for many more years. I have primary SS. Does anyone else have crazy symptoms like really dizzy and lots of anxiety attacks. Most days I feel like I'm dying. No energy and breathless most days. Can't take any meds as I am to sensitive. They all make me sick. Feel like I'm just taking up space and wasting everyones time......Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-79530471043382806702015-04-16T15:31:36.922-07:002015-04-16T15:31:36.922-07:00Sjogrens can mimic MS so at the Mayo tomorrow I wi...Sjogrens can mimic MS so at the Mayo tomorrow I will see what they think I might have. Both, one or neither.Anonymoushttps://www.blogger.com/profile/05705036088828613397noreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-56297820473092833442015-04-13T20:30:52.500-07:002015-04-13T20:30:52.500-07:00Thank you for posting all the daily posts on Faceb...Thank you for posting all the daily posts on Facebook! Love them! I was diagnosed ~ 5yrs ago at the age of 36. Now looking for ways to improve overall health and diet to hopefully get off a few of the meds. Love to read your posts!Mikihttps://www.blogger.com/profile/16656939543025811518noreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-76408953817411609002015-04-13T01:24:42.277-07:002015-04-13T01:24:42.277-07:00Thank you for this blog. I just diagnoset but nev...Thank you for this blog. I just diagnoset but never heard about Sjogrens before. 7 years sins I lost all my teeth at 43 year old, . And now the eyes are bad and my body. The doktors never put all my diagnoset toghether until now. <br />Thanks Jo hardarhttps://www.blogger.com/profile/01578237627991361578noreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-53312142668388564952015-04-12T23:04:13.525-07:002015-04-12T23:04:13.525-07:00Thanks so much for joining in and giving this good...Thanks so much for joining in and giving this good advice to others. We need to be proactive in our health.sjogren's bloghttp://sjogrenssyndrome.blogspot.com.au/2015/04/please-join-in-my-sjogrens-book-giveaway.htmlnoreply@blogger.comtag:blogger.com,1999:blog-480140972539070676.post-52461968568088832712015-04-12T21:02:13.916-07:002015-04-12T21:02:13.916-07:00Thanks for inviting me. I was dx'd with Sjogr...Thanks for inviting me. I was dx'd with Sjogren's approximately 45 years ago, but was told, at that time, it was no big deal and was told only to use OTC artificial tears as needed. Turns out that was not the best advice...lol... and I'm paying for it now with terribly expensive dental bills in spite of having almost perfect teeth until about 15-20 yeas ago. I look forward to learning from others in this group. Thanks again.Anonymousnoreply@blogger.com